Rare Cancer Patient Support Specialist
Rare Cancers Australia
- Wollongong, NSW
- Permanent
- Full-time
- Part time role (0.6 FTE can be worked as full days or spread over the working week)
- A flexible, friendly and supportive culture
- Competitive salary on offer, coupled with not-for-profit salary packaging eligibility.
- Hybrid work arrangements in Bowral / Wollongong with up to 1 FTE day WFH (based on a three day week, if working over all 5 days 2 days per week could be performed from home once indication and onboarding complete)
- Full time in the office can also be accommodated, depending on candidate preference
- Serving as a primary point of contact (primarily via telephone / videoconferencing) for individuals diagnosed with rare cancers and their families, offering emotional support, practical guidance, and tailored information throughout their cancer journey.
- Conducting comprehensive assessments of individual needs, preferences, and challenges to develop personalised care plans and strategies.
- Providing information and education on rare cancers, including treatment options, clinical trials, supportive care services, and financial assistance programs.
- Collaborating closely with healthcare professionals, including oncologists, nurses, and allied health professionals, to ensure coordinated and holistic care delivery.
- Advocating for patient rights and preferences within the healthcare system, addressing barriers to access and navigating insurance, reimbursement, and disability issues.
- Facilitating connections with peer support networks, community organisations, and other relevant resources enhances social support and empowers individuals to become active participants in their care.
- Maintaining accurate documentation of interactions and outcomes, ensuring confidentiality and adherence to ethical standards.
- Tertiary qualifications or commensurate significant experience in one or more of the following areas: nursing, social work, counselling, primary/community health development, health promotion and project management, social sciences and medicine.
- Clinical experience in oncology or rare diseases is preferred.
- Strong understanding of the psychosocial impact of cancer diagnosis and treatment on individuals and families.
- Excellent communication and interpersonal skills, conveying empathy, compassion, and respect in all interactions.
- Comfortable communicating over the telephone and in email environments.
- Demonstrated ability to assess needs, develop care plans, and navigate complex healthcare systems.
- Commitment to person-centred care and advocacy for equitable access to healthcare resources.
- Proficiency in Microsoft Office Suite and electronic health record systems.
- Have your own vehicle and be willing to undertake intrastate and interstate travel occasionally.